- • Blogs/Online Diaries
- • Blog: 30 Things About My Invisible Illness You May Not Know
- • Blog: A look into the past… « Glimpses into the life of one person with many diagnoses
- • Blog: Airlines and flying, with a service dog.
- • Blog: An Artist’s Musings: How flexible are you?
- • Blog: And this is why we don’t make plans
- • Blog: Another Health Care Story
- • Blog: Bad Glue: The Eyes Have (had) It
- • Blog: Bug Update
- • Blog: Carolyn’s Chiari: Overview
- • Blog: Disability Court Date!
- • Blog: Dragonfly- Living With Ehlers-Danlos: Just another day…not so bad
- • Blog: Ehlers Danlos Syndrome in New Zealand: Every cloud has a silver lining!
- • Blog: Ehlers Danlos Syndrome. What day to day life is like
- • Blog: Ehlers-Danlos Syndrome: It is hot!
- • Blog: Fear. | Frogpondsrock…
- • Blog: HMOs
- • Blog: My Life With Ehlers-Danlos: 30 Things About My Invisible Illness You May Not Know
- • Blog: My New Wheelchair!
- • Blog: New shoes!
- • Blog: Nominate EDNF for $10,000 Charity Award
- • Blog: On the go (wheelchair)
- • Blog: Pass The Duct Tape: Prayers for Megan
- • Blog: Sherlock’s Stuff: Dental woes
- • Blog: Silver Ring Splints
- • Blog: The Bump
- • Blog: The Judge’s Findings and Ruling in My SSI Case (Lawyer Friendly)
- • Blog: The Tensile Times: osteoporosis link with EDS plus a little of me
- • Blog: The Tensile Times: Shit Happens
- • Blog: The Whole Health Care Debate….
- • Blog: various ramblings – finally, a new post…
- • Blog: why i hate doctors, part #12834 in a series
- • Blog:One Way Or Another: My Life With Marfan, Part 4
- • Disability/Legal Issues
- • Disability : Can I Get Disability if I Have Not Worked Before?
- • Disability : If I Get Social Security Disability Will They Cut Off My Benefits Later?
- • Disability : Should You Hire a “Social Security Disability Advocate” or a Real Lawyer to Represent You
- • Disability: A Social Security Disability Check situation
- • Disability: How long Does it take to get a Decision Letter for Social Security Disability?
- • Disability: If My Doctor Gives Me a Letter Will I Get Disability?
- • Disability: Social Security Disability and Getting a Different Diagnosis on a Mental Condition
- • Disability: The Biggest Mistake in a Social Security Disability Claim may be…
- • Disability: What do Doctors Know about Social Security Disability?
- • Disability: What if you get Social Security Disability Benefits and you move to another state?
- • Disability: Where Do You Begin When Applying For Social Security Disability Benefits?
- • Disability:If You get Disability Benefits, will Your Dependents get a Check?
- • Legal: Beware of ICBC trolling through your Facebook photos | Vancouver, Canada
- • Forum Posts
- • Facebook | Chicago EDS Group
- • Forum: Can Ehlers Danlos Syndrome cause heavy periods? – Yahoo! Answers
- • Forum: Difference between EDS III and other kinds of hypermobility | Facebook
- • Forum: Facebook | Conflict between rheumatologist and surgeon
- • Forum: Facebook | I think i may have EDS and Dysauntonomia need advice and help
- • Forum: Facebook | Physical Therapy Tips
- • Forum: Facebook | Staying in shape/working out with EDS
- • Forum: gastroparesis Idiopathic/post viral – Discussion – AGMD GI Motility Disorders Support
- • Forum: Hypermobility Forum for people with Marfan, EDS (this is an archiveof older posts)
- • Forum: Idiopathic Gastroparesis/ Ehlers-Danlos Syndrome – Discussion – AGMD GI Motility Disorders Support Community
- • Forum: Pain medications – Discussion – AGMD GI Motility Disorders Support Community – Inspire
- • Forum: Wife and daughter just diagnosed EDS 4| Facebook
- • Medical
- • Medical: Breast calcifications in Ehlers-Danlos syndrome. [Breast J. 2008 Mar-Apr] – PubMed Result
- • Medical: EDS CARES Research Updates
- • Medical: Eurordis – The Voice of 12,000 Patients: Experiences & Expectations of Rare Disease Patients on Diagnosis & Care in Europe (scroll down and click on the EDS chaptre)
- • Medical: High prevalence of Food Allergies in Patients with Ehlers-Danlos Syndromes
- • Medical: HORMONAL ASPECTS OF HYPERMOBILITY
- • Medical: Neuromuscular involvement in various types of Ehle…[Ann Neurol. 2009] – PubMed Result
- • Medical: Pediatrician’s Guide to Ehlers-Danlos « The Eye Doc Blog
- • Medical: Prevalence of urinary and faecal incontinence amon…[J Obstet Gynaecol. 2009] – PubMed Result
- • Medical: Reduced quantitative muscle function in tenascin-X…[Neuromuscul Disord. 2007] – PubMed Result
- • Medical: Tiny rifts create fragility in collagen
- • EDS in the News
- • News: “A Serious Illness Can Isolate a Family: Gestures of Support Help Greatly”
- • News: Brave Jasmines family fundraiser – Pontefract and Castleford Express
- • News: Brave Sophia is granted a wish
- • News: Chance diagnosis gives family hope
- • News: Disabled Man Gets Ticket For Handicap Parking – News Story – WFTV Orlando
- • News: Disabled people spend Day at the Beach | Asbury Park Press
- • News: Double trouble | From the Observer | The Observer
- • News: Ehlers-Danlos Syndrome On NPR
- • News: Graduating Class
- • News: Joint hypermobility syndrome case study
- • News: Marfan Syndrome
- • News: Media Personality Named National Spokesperson
- • News: Mum brings Pokémon closer to her son – Dunstable Today
- • News: Not the Karate Kid: Highland martial arts expert, 41, wins bronze at Maccabiah Games
- • News: Phoenix area residents speak out about massage therapy, medical insurance, and health care reform
- • News: Pro Wrestling Digest » Blog Archive » National Charity to Hold First Bike Run: Meet Pro Wrestling Personality
- • News: Surviving the stigma of invisible disabilities
- • News: Ten-year-old’s courageous op » Shrewsbury Chronicle
- • News:Film highlights struggles of ill children – Providence Business News
- • Videos
- • Video: Bad Glue: Ehlers Danlos Syndrome On Mystery Diagnosis – Full Episode
- • Video: EDS Aorta – Video Clip from ABC in Toledo, OH
- • Video: Postural Tachycardia Syndrome Documentary
- • Video: YouTube – Don’t Presume
Please feel free to start promoting the EDS Alert Newsletter where ever you think it might help. Note for readers who use RSS feeds – the link to set up your own feed is here.
This is our quarterly round-up of information about Ehlers-Danlos Syndrome (EDS). For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from articles that require subscriptions or paid memberships to access.
