EDS Alert Newsletter No. 32
June 14, 2009- • Blogs/Online Diaries
- • Blog: A bit of an update…_hotspotnews_hotspot
- • Blog: A day in the life « Brilliant Mind Broken Body
- • Blog: Am I going crazy?
- • Blog: Ankle Update
- • Blog: Be Reasonable With Doctors
- • Blog: Dealing with Ehlers danlos syndrome: Heart clinc @ ALL CHILDRENS HOSPITAL(-)
- • Blog: Disabilities etiquette
- • Blog: Disability: Stranger in the family
- • Blog: Doctors – Just get a new one
- • Blog: Dr. Bolognese has been reinstated!!!
- • Blog: ebb Tide: “Women who are sick…”(-)
- • Blog: EDS is ruining my sex life
- • Blog: EDS, Opinions and More: March 3, 2009(-)
- • Blog: Ehlers Danlos Awareness Month
- • Blog: Ehlers Danlos Awareness Month
- • Blog: Ehlers Danlos Awareness Month | Frogpondsrock…
- • Blog: Ehlers Danlos Syndrome – Locking elbow – update
- • Blog: Ehlers Danlos Syndrome – New Here(-)
- • Blog: Ehlers Danlos Syndrome in New Zealand: “Calling All Classic’s Out There!”
- • Blog: Ehlers Danlos Syndrome in New Zealand: Is Anybody Out There?
- • Blog: Ehlers Danlos syndrome mentioned on CNN
- • Blog: Ehlers Danlos Syndrome « Trusting Thought
- • Blog: Ehlers-Danlos and the Librarian in Black(-)
- • Blog: Ehlers-Danlos Syndrome-Deal With It: Hands
- • Blog: Ehlers-Danlos Syndrome-Deal With It: Vitamin C
- • Blog: Gathering Information
- • Blog: Hello. My name is Sarah, and I have Ehlers-Danlos Syndrome.
- • Blog: Help Anyone???
- • Blog: Here It Goes Again… her ankle that is!(-)
- • Blog: Home from Toronto…endocopy & sedation
- • Blog: Hypermobility Fundraising & Awareness Campaign: Walk for Skin Event 17/05/09
- • Blog: life with ehlers danlos: Hip Injection(-)
- • Blog: microscopic colitis & EDS
- • Blog: My Life with Ehlers-Danlos Syndrome: A New Beginning
- • Blog: My Story: New Beginnings
- • Blog: New Stuff (gastroenterologist )
- • Blog: Nostromo and Splints
- • Blog: One Sick Mother: The Sickest Loser?
- • Blog: Our Journey with Ehlers-Danlos Syndrome: Arthritis Walk 2009
- • Blog: Our Journey with Ehlers-Danlos Syndrome: The Wrist(-)
- • Blog: Our Journey with Ehlers-Danlos Syndrome: Which came First???
- • Blog: Please don’t stare, just ask
- • Blog: Resolution
- • Blog: Rohrer Family: Update
- • Blog: Scheduling and changing appointments
- • Blog: Suggestions – They’re a Good Thing
- • Blog: Taking a break – hopefully a short one
- • Blog: Taking Winter One Day at a Time
- • Blog: Thank you – and the Good of our Appointment!(-)
- • Blog: The First Clues of EDS
- • Blog: Two Chiari Surgeons Suspended
- • Blog: We have the Brace!
- • Blog: Rare Disease Day and Ehlers Danlos Syndrome(-)
- • Blog: Where am I now?
- • Blog: Why I was gone… « Brilliant Mind Broken Body
- • Blog: You’re sick? You look so good, though.
- • Blog: “My Muscles Feel Heavy”-How Children Describe Ehlers-Danlos(-)
- • Disability/Legal Issues
- • Disability: Can a Collection Agency or Business Garnish My Social Security Disability Check?
- • Disability: Has Anyone Ever Won Their Social Security Disability Benefits While They Had A Job?
- • Disability: How to Win Your Social Securty Disability or SSI Benefits
- • Disability: Most Bankruptcies are the result of Medical Bills Even for Those who Have Health Insurance
- • Disability: Securing disability insurance coverage
- • Disability: Social Security Disability For Mental Illness
- • Forum Posts
- • Forum: EDS and body weight(-)
- • Forum: EDS and POTS | Facebook
- • Forum: EDS Dr in MD or VA(-)
- • Forum: Excruciating Hip Pain(-)
- • Forum: Gastroparesis from dopamine RI vs agonist?
- • Forum: Hip and lower back pain! | Facebook
- • Forum: INTENSE ABDOMINAL PAIN | Facebook
- • Forum: Newly diagnosed nurse… may need to change jobs. Need advice.(-)
- • Forum: PatientsLikeMe : Patients Helping Patients Live Better Every Day
- • Medical Articles
- • Medical: Hypermobility increases risk of osteoporosis | The Philippine Star
- • Medical: Menstrual cycle affects knee joints
- • Medical: Scalp Laxity Paradox – Scar Size After Hair Transplants
- • Medical: Some Pain Medications May Interact With Anti-Depressants
- • EDS In The News
- • News: A PLYMOUTH mother has sent out a huge thank you and a plea for more help in raising funds for her son.
- • News: Against All Odds (translated from Norwegian)
- • News: BBC – Ouch! (disability) – Opinion – Face to Facebook(-)
- • News: Calm in the midst of a medical storm(-)
- • News: Cape grad wants to educate public on painful condition
- • News: Firm faith leads Frisch to pen book in face of grave illness
- • News: Hospital reinstates neurosurgeon in anesthesia incident
- • News: Internet switched on after PN plea
- • News: King: In tough times, health care considered a luxury – CNN.com(-)
- • News: Lacrosse Magazine :Colgate Corrals a Rising Star in Miller(-)
- • News: Lake Country Calendar – Pitch in on playground in memory of a friend(-)
- • News: Left Paw Press Donates To EDNF (Ehlers-Danlos National Foundation)
- • News: Local sports in brief – Utica, NY – The Observer-Dispatch(-)
- • News: North Shore Hospital probes neurosurgeons’ actions — Newsday.com
- • News: Plano family advocates to raise awareness for genetic disease
- • News: Sale to benefit NOTL teenager
- • News: Therapy pool provides relief, a hope of optimum health
- • News: Top N.Y. neurosurgeons suspended, sued : Covering Health(-)
- • News: Webb City youth chosen as CMN’s Missouri champion
- • News: Why are some people ‘doublejointed’?
- • Video
- • Video: Comedian Dustin Woods -EDS & POTS
- • Video: Fantastik Elastic (translated from German)
- • Video: National Pain Care Policy Act(-)
- • Video: Woman abandoned in operating room by brain docs felt betrayed, humiliated(-)
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This is our quarterly round-up of information about Ehlers-Danlos Syndrome (EDS). For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
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