EDS Alert Newsletter No. 31
May 11, 2009- Blogs/Online Diaries
- • Blog: April Pain Management Appointment
- • Blog: 15 Minutes of Fame: Dislocated but not disconnected
- • Blog: Back from Baltimore! (Adult genetics at Greater Baltimore Medical Center)
- • Blog: Bendy Bloggers
- • Blog: Carolyn’s Chiari: Symptom Watch, Medication Changes, and POTS stuff
- • Blog: Ch, ch, ch, ch, changes ” Life with MS & EDS(-)
- • Blog: Chiari Malformation: Assistance Dog update(-)
- • Blog: Chronic Pain ” oregonnerd: differing views(-)
- • Blog: Clear, concise & positive information!
- • Blog: EDS charitable giving pointer
- • Blog: Ehlers-Danlos syndrome(-)
- • Blog: Ehlers-Danlos Syndrome-Deal With It: Vacation(-)
- • Blog: Ehlers-Danlos Syndrome: My Story Begins(-)
- • Blog: From Huskies to Husbands: Preliminary Diagnosis – Ehlers-Danlos Syndrome & FIbromyalgia
- • Blog: Having children when you have EDS!
- • Blog: Home care: not just for the elderly
- • Blog: How health insurers secretly blacklist those with certain ailments
- • Blog: Hypermobility Fundraising & Awareness Campaign: Wanted: Your used Postage Stamps
- • Blog: I could have done without that
- • Blog: In Sickness and In Health: A Place for Couples Dealing with Illness
- • Blog: Increase awareness of connective tissue illness
- • Blog: Joint instability and the middle ” In The Fringes
- • Blog: Just a quick update – hi
- • Blog: Liven with Ehlers Danlos Syndrome and tryen to keep Life Together!: Carzy Life….(-)
- • Blog: My Angel : I Have Ehlers-danlos Syndrome Type 3 Personal Stories & Experiences
- • Blog: My Doctor is Killing Me: An Open Letter to Emergency Room Staff
- • Blog: My Life with Ehlers-Danlos Syndrome: March Update
- • Blog: New heart problem….
- • Blog: One Sick Mother: Worlds Are Colliding(-)
- • Blog: Our Journey with Ehlers-Danlos Syndrome: $%#@%^@#%&^@% What is Wrong with People?!(-)
- • Blog: Our Journey with Ehlers-Danlos Syndrome: An Inspiration to Never …
- • Blog: Reality doesn’t go away
- • Blog: Seven Years | Sleepless Nights
- • Blog: Surviving Chronic Illness: Ehlers-Danlos Syndrome: Celebrate the Day
- • Blog: Surviving Chronic Illness: Ehlers-Danlos Syndrome: Cycling Seasons(-)
- • Blog: The Workings of a Broken System
- • Blog: Three Choices
- • Blog: Trapped! (Blogging against disabilism day) ” Brilliant Mind Broken Body
- • Blog: Update on shoulder/back situation ” Of Code and Cats(-)
- • Blog: Updates and Flashbacks(-)
- • Blog: various ramblings – step one(-)
- • Blog: Why I need a service dog, and what he’ll do for me.
- • Blog:Ehlers Danlos Syndrome in New Zealand: Dearest Oprah
- Disability/Legal Issues
- • Disability: Disappearing Disability Insurance Fails Family – cbs5.com(-)
- • Disability: How to Get Disability with a Back Injury
- • Disability: Securing disability insurance coverage (Page 1 of 4)(-)
- • Disability: How Does Social Security Evaluate Fibromyalgia Claims?
- • Disability: Is there a short term Social Security Disability Benefit?
- • Disability: Suing for Benefits: A Dilemma for the Disabled – cbs5.com(-)
- • Disablity: Winning LTD Claims at the Initial Application Level
- Forum Posts
- • Forum: – gastroparesis (yeah it’s me again)
- • Forum: Benign Hypermobility Syndrome vs EDS?
- • Forum: I need advice with talking to my doctor | Facebook(-)
- • Forum: List of EDS books and literature
- • Forum:Facebook | Anti-depressants for Pain Management
- • Forum:| Worsening Pain- Can it be reversed?
- Medical Articles
- • Medical: Abnormalities of the lungs and thoracic cage in the Ehlers-Danlos syndrome (abstract)
- • Medical: Asthma and airways collapse in two heritable disor…[Ann Rheum Dis. 2007] – PubMed Result(-)
- • Medical: Benign Joint Hypermobility Syndrome: Evaluation, Diagnosis, and Management
- • Medical: Breast calcifications in Ehlers-Danlos syndrome. [Breast J. 2008 Mar-Apr] – PubMed Result(-)
- • Medical: Diagnosing children
- Medical: Issues and Management of Joint Hypermobility Book by Dr. Brad T. Tinkle
- • Medical: EDS presenting as tongue hypermobility
- • Medical: Ehlers-Danlos Syndrome (EDS) | massagetoday.com
- • Medical: Ehlers-Danlos syndrome: associated with prematurity and premature rupture of foetal membranes
- • Medical: How to Diagnose Ehlers-Danlos Syndrome
- • Medical: How to get out of bed properly
- • Medical: Multiple spontaneous dislocations in a patient with EDS
- • Medical: Overview of Ehlers-Danlos Syndrome
- • Medical: Pain Medications and Motility? In My Stomach?
- • Medical: So You Think You Have EDS? ” EDS Alert Newsletter(-)
- • Medical: Spontaneous rupture of the spleen in type IV Ehler…[Surg Today. 2009] – PubMed Result(-)
- • Medical: The differential diagnosis of children with joint …
- • Medical: To investigate the effects of FFOs on the lower limb symptoms associated with hypermobility syndrome (HMS).
- • Medical: Urinary problems in EDS patients
- • Medical: Using Joints Wisely with Ehlers-Danlos
- • Medical: V-EDS, surgical challenges
- • Medical: V-EDS, trauma docs need to know
- • Medical: Vascular complications from anterior spine surgery…[Spine. 2009] – PubMed Result
- • Medical: Vascular EDS-complications kill pregnant mother & baby
- EDS In The News
- • News: BCLocalNews.com – Sorsdahl remembered with a playground(-)
- • News: Bizarre ER: EDS Patient In The ER
- • News: Firm faith leads Frisch to pen book in face of grave illness
- • News: LOCAL WOMAN GETS TOP SPOT FOR PIER SWIM CHALLENGE
- • News: NOTL teen facing brain surgery for rare disorder – Niagara Advance – Ontario, CA(-)
- • News: Stephanie strikes lucky with Vegas(-)
- • News: You won’t have children will you?(-)
- • News:Matthew’s in the swim – News – gethampshire(-)
- Video
- • Video: EDS Questions(-)
- • Video: Ehlers-Danlos Syndrome – CMC Splints(-)
- • Video: Ehlers-Danlos syndrome: Take Your Time(-)
- • Video: Life Before Diagnosis(-)
- • Video: Proof of EDS?(-)
- • Video: Revisiting EDS and FMS(-)
- • Video: Show and Tell with Bracing!!(-)
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