- • Blogs/Online Diaries
- • Blog: A “Dislocatey” Week So Far(-)
- • Blog: A Moral Dilemma
- • Blog: A Weak Moment(-)
- • Blog: Apathy and Hypermobility
- • Blog: Arthritis Foundation – How They Help You(-)
- • Blog: Awaiting – EDNF – weather(-)
- • Blog: Back again(-)
- • Blog: Chiari Malformation: Home again
- • Blog: Diagnosis?
- • Blog: Digesting Ehlers-Danlos(-)
- • Blog: Dogs rarely get Ehlers Danlos Syndrome
- • Blog: EDS Training Day Seminar Walnut Creek, CA (Nov 08)
- • Blog: Ehlers-Danlos – Update
- • Blog: Feeling a little like crying ” Practicing Intentional Gratitude
- • Blog: Hi recently diagnosed with EDS Type 3
- • Blog: Hypermobility Syndrome
- • Blog: I am so tired of fighting through the medical system
- • Blog: I just wanted to introduce myself to everyone.
- • Blog: I’m 28 and live in sunny Brisbane, Australia. I have Ehlers-Danlos Syndrome, hypermobility type,
- • Blog: Illinois Medical Practices Act versus accountability
- • Blog: It is Ehlers-Danlos
- • Blog: life with ehlers danlos: Cincinatti Childrens Hospital
- • Blog: Missed Opportunities – Does Michael Phelps Have Marfan Syndrome?
- • Blog: Monday, September 29, 2008 ” Kelsey Kanoy’s Journey
- • Blog: my cervical and thoracic vertebrae have unstable facet joints,
- • Blog: Nathan’s HBOT one day at a time.: Weekend Update(-)
- • Blog: New Facebook Hypermobility Community
- • Blog: NICOLO PAGANINI and EDS
- • Blog: Not sure how to feel ” Practicing Intentional Gratitude
- • Blog: Quick update from out-of-town(-)
- • Blog: Real Estate Brain Surgery
- • Blog: symptoms and correlating factors for Ehlers-Danlos Syndrome,
- • Blog: Tendonosis
- • Blog: The Big Bus(-)
- • Blog: The Diary of a Dysautonomic.: My Health…In a Nut Shell.
- • Blog: The Extreme Homemake over Toledo begins…(-)
- • Blog: The Rubber Man
- • Blog: They had heard of Ehlers-Danlos Syndrome but had never met anyone with it.
- • Blog: Think back 19 years; small, blonde, baby. -
- • Blog: Why Paula Uses a Wheelchair
- Disability/Legal
- • Disability – Getting disability payments can be a fight to the death – OregonLive.com
- • Disability: Congress is Incredibly Corrupt – disability backlogs and Pork barrel spending
- • Disability: How to Speed up a Social Security Disability Claim
- • Disability: If a creditor is garnisheeing your Social Security benefits, it may be illegal
- • Disability: List Your Mental Conditions on a Social Security Disability Application
- • Disability: Social Security Disability Evaluation or Exam
- • Disability: Understanding the Social Security Definition of Disability
- • Disability: Will Social security Disability do medical check ups on me after I am approved?
- • Disability:Calling about your Social Security Disability Claim (can prevent problems)
- Forum Posts
- • Forum: Disaboom | Hi Everyone, I have Ehlers-Danlos Syndrome
- • Forum: Ehlers-Danlos Syndrome? – Homesteading Today
- • Forum: i have EDS III and in the winter i suffer with really painful cramps in my hands
- • Forum: Stretchy skin, eye pressure, cracking joints…
- Medical
- • Medical UpdateBlog: They can’t actually do the test for Ehlers-Danlos Syndrome
- • Medical: Equine Ehlers-Danlos Syndrome (HERDA) – Veterinary Medicine Videos – The Doctor’s Channel(-)
- • Medical: Pseudoaneurysm of the Peroneal Artery: Presentation of Ehlers Danlos
- • Medical: What is Valvular dysplasia
- EDS In The News
- • News: Austin Realtor Helps Brain Surgery Patient Sell and Purchase Home Just Before Emergency Hospital Care(-)
- • News: Be clear about your pain and explain the way it affects your life …
- • News: Diplomat will let her feet do the talking – Morpeth Herald(-)
- • News: Double jointed: Curse or blessing?
- • News: How to talk to your doctor about chronic pain
- • News: I was shocked not to see Ehlers-Danlos syndrome included.
- • News: KS couple makes art for love’s sake | The Tennessean
- • News: Local woman moving to Belgium for healthcare
- • News: Not so fast – The Oregonian – Special Coverage from The Oregonian – OregonLive.com
- • News: Police stop ‘pretty unusual’ for marijuana exemptee – Ontario, CA(-)
- • News: Relief a clinic away Australia
- • News: Rugby Match Cash Helps Disabled Boy (from Wiltshire Times)
- • News: Services reduced until state budget gets passed – Chico Enterprise Record(-)
- • News: Sick and ignored: our medical shame – Health – Specials – smh.com.au(-)
- • News: Super dog helps Anglesey woman fulfil dream – Daily Post North Wales(-)
- • News: Superdog hasn’t qualifications for university – Daily Post North Wales(-)
- • News: Teens turning to weight-loss surgery | delawareonline | The News Journal
- • News: The loss of a friend – News(-)
- Video
- • Video: Ehlers-Danlos syndrome strikes 1 in 5,000 9/09/08(-)
- • Video: Getting disability payments can be a fight to the death – The Oregonian
Please feel free to start promoting the EDS Alert Newsletter where ever you think it might help. Note for readers who use RSS feeds – the link to set up your own feed is here.
This is our quarterly round-up of information about Ehlers-Danlos Syndrome (EDS). For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from articles that require subscriptions or paid memberships to access.
