- • Blogs/Online Diaries
- • Blog: How To Handle This Panic Inducing Board Scenario(-)
- • Blog: Joannespangle’s Weblog
- • Blog: 3 1/2 Weeks of Summer Camp Down(-)
- • Blog: A Bad Week Made Worse(-)
- • Blog: atrophic scar aka cigarette paper scar
- • Blog: Chiari Malformation: Wheelchairs
- • Blog: Choosing a Vehicle for Special People (like Me) with Ehlers-Danlos Syndrome
- • Blog: Diagnsed With EDS – Mass Doctors?
- • Blog: Doctor Issues & Pain Meds
- • Blog: EDS Scholarship “In memory of..”
- • Blog: Ehlers-Danlos Follow-Up(-)
- • Blog: Ehlers-Danlos National Foundation 2008 Conference in Houston/Foundation Censorship?
- • Blog: Ehlers-Danlos: A Rare Profile in the News(-)
- • Blog: Feeling Sorry for Yourself(-)
- • Blog: had my echo cardiogram
- • Blog: Hello all! I am 19 year old female from(-)
- • Blog: High Arched Palate
- • Blog: How to Get Your Doctor to Take Your Pain Seriously | Healtharchive.net
- • Blog: I want great care! (Doctors)
- • Blog: I’ve had a middle aged moment, and it was nothing – EDS
- • Blog: It’s been 4 months
- • Blog: Late life diagnosis(-)
- • Blog: More Shoulder Fun(-)
- • Blog: My Orthopods Are My Primary Care Docs(-)
- • Blog: New to the group but not the one with EDS
- • Blog: Newspaper, Masters Papers, what next?
- • Blog: One size fits all?
- • Blog: Our Ehlers-Danlos Article – Published!
- • Blog: Pain and Recovery ” Practicing Intentional Gratitude(-)
- • Blog: Poison Plants, Infectious Insects and Troublesome Teens(-)
- • Blog: Row of Ducks (EDS & Chiari)
- • Blog: Short Story From Vietnam
- • Blog: Social Model Doctors (no, really)
- • Blog: Summer Progress on Dragon Naturally Speaking(-)
- • Blog: The Numbering System May Need to Change(-)
- • Blog: Uh, so what is Ehlers-Danlos Syndrome?
- • Blog: What do rats smell like anyway?
- • Blog: Where Does The Vitamin C Go?
- • Blog:i am having one of those weeks
- Disability
- • Disability: Short-term disability income taxes
- • Disability : Disability Insurance Claim Advice – Consultant and Negotiator(-)
- • Disability : Disability insurance premiums
- • Disability: American Conference Institute Conference on Litigating Long Term Disability
- • Disability: Employers use federal law to deny benefits – Yahoo! News(-)
- • Disability: Is Social Security and Medicare Sustainable?
- • Disability: LTD Group Manual.pdf
- • Disability: My Disability Claim was Denied, Should I Reapply?
- • Disability: Ninth Circuit Shoots Down Disability Claim for Copying Charges : ERISA and Disability Benefits Law Blog
- • Disability: Reporting Social Security Disability Fraud – before doing so, read this first(-)
- • Disability: Should your Doctor determine if you get Social Security Disability or SSI?
- • Disability: Sixth Circuit: IME Results Doom Plaintiff’s Disability Claim
- • Disability: Social Security Disability Benefits | AllFinancialMatters
- • Disability: Surveillance Techniques in the Disability Insurance Industry v
- • Disability: Who Qualifies for SSI Disability Benefits?
- • Disability: Will Social Security Disability Consider my Work History?
- Forum
- • Forum: I was diagnosed with a collagen elasticity disorder by my geneticist
- • Forum: Need Help with toe & knee ouchiness
- • Forum: New dx and a question about rheumatology appt.
- • Forum: saw the PT for the first time and guess what?
- • Forum: TENS unit and US airport security(-)
- • Forum: The differences between EDS and General Hypermobility
- • Forum: What the Geneticist Told my Dr – EDS is not disabiling
- Medical
- • Medical: A novel therapeutic strategy for Ehlers–Danlos syndrome based on nutritional supplements .
- • Medical: Abnormal Retinal Blood Vessels in Ehlers-Danlos Syndrome Type VI(-)
- • Medical: Coping – Ehlers-Danlos Syndrome.
- • Medical: Determinants of Patient Satisfaction Following Surgery for Multidirectional Instability(-)
- • Medical: Dr. Diana Driscoll Speaks at The National Ehlers-Danlos Foundation Meeting on the Ocular Effects of Ehlers-Danlos Syndrome (excellent handouts forr your doctor plus general tips on managing EDS)
- • Medical: Dr. Diana Driscoll To Speak Before the Ehlers-Danlos National Foundation National Meeting
- • Medical: Ehlers–Danlos syndrome and multiple sclerosis: a possible association — Vilisaar et al. 14 (4): 567 — Multiple Sclerosis
- • Medical: Exercise In A Pill: Researchers Identify Drugs That Enhance Exercise Endurance(-)
- • Medical: Fourth International Consultation On Incontinence (ICI) – Pathophysiology Committee Highlights(-)
- • Medical: Isolated Acute Dislocation of the Proximal Tibiofibular Joint(-)
- • Medical: Pharmocological Implications and EDS
- • Medical: The Brain Is Harmed By Chronic Pain
- News
- • News: BillingsGazette.com :: Benefit planned for Laurel woman
- • News: Bridlington boy’s hopes of life-changing surgery dashed by doctors(-)
- • News: Dennis children help transform vacant area(-)
- • News: Dr. Diana Driscoll To Speak Before the Ehlers-Danlos National Foundation National Meeting ” The Eye Doc Blog
- • News: Father in a world of pain(-)
- • News: Feldenkrais: helping the body adjust to problems(-)
- • News: Lady Lake resident needs surgery to relieve the effects of rare neurological disorder
- • News: Last-Resort Op Is A Sore Point – The Daily Record
- • News: Medical records on the internet: a revolution in healthcare or a security disaster waiting to happen? – Times Online(-)
- • News: Nathan: Such a great zest for living – Brighouse Today(-)
- • News: National Arthritis Foundation(-)
- • News: New careers website launched for teens
- • News: Our darling Nathan was loved by so many: 13-year-old dies only days before vital op – Halifax Today(-)
- • News: Rare illness means Alex’s joints fall apart up to 70 times a day and he has to be put back together
- • News: Reston Resident Blogs About Her Health to Help Educate Others
- • News: Savannah smiles
- • News: Teenager sets off on end-to-end trip – John O’Groat Journal and Caithness Courier
- • News: UK event: Mid Sussex – HMSA Awareness and Fundraiser
- • News: Woman Uses MySpace to Fight Rare Diseases
- Video
- • Video: ABC News: Denied: Fighting For Insurance Coverage(-)
- • Video: Ehlers Danlos Video
- • Video: Elastic People
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This is our quarterly round-up of information about Ehlers-Danlos Syndrome (EDS). For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from articles that require subscriptions or paid memberships to access.
