EDS Alert Newsletter No. 25

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This is our quarterly round-up of information about Ehlers-Danlos Syndrome (EDS). For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.

• Blogs/Online Diaries
• Blog: Blogging with EDS
• Blog: Chiari & EDS
• Blog: Cost of Medicine on a Family
• Blog: giving EDS a bad name – the BUNNY ™ MySpace Blog(-)
• Blog: In which I am Stiff
• Blog: Joint Hypermobility and Physical Therapy(-)
• Blog: Living with EDS: A first-hand primer to living with Ehlers-Danlos
• Blog: Occupational Therapy
• Blog: Parents Fighting Back Against Abuse Allegations
• Blog: Steve, the guy I am helping out, has a disease/syndrome called ehlers-danlos syndrome
• Blog: You Would Think I Would Be Surprised….(-)
• Blog; EDS and treatments
• Blogs: Communities for EDS.
• Blog» I am going to put a bunch of links on here
• Blog: Since my Ehlers-Danlos Syndrome diagnosis :/ my body has been somewhat falling apart
  
• Blog: Something else to crack up over…(-)

• Disability/Legal Issues
• Disability: Disabled often wait years for Social Security payment | Dallas Morning News)
• Disability: Law protects SSI disability benefit(-)

• Forum Posts
• Forum: A Hidden, Non-Physical Consequence of EDS?(-)
• Forum: Anyone with Ehlers Danlos Syndrome, pleasse answer these questions…? – Yahoo! Answers(-)
• Forum: bumps under the skin?
• Forum: EDS A sad road(-)
• Forum: EDS how tall are you?
• Forum: EDS Today Support Group Board: Maryland?(-)
• Forum: Ehlers danlos syndrome complications? – Yahoo!7 Answers(-)
• Forum: Idiopathic Gastroparesis/ Ehlers-Danlos Syndrome
• Forum: It’s Been A Crazy Few Weeks… (update)(-)
• Forum: Learning to live with gastroparesis
• Forum: Spoke to my doctor…

• Medical
• Medical: Chronic Pain Harms Brain’s Wiring | LiveScience(-)
• Medical: Ehlers-Danlos syndrome – MayoClinic.com(-)
• Medical: Ehlers-Danlos syndrome and multiple sclerosis: a possible association — Vilisar et al.)
• Medical: Posterolateral rotatory instability of the elbow — Journal of Bone and Joint Surgery)
• Medical: The Breast Journal: Breast Calcifications in Ehlers-Danlos Syndrome

• EDS In The News
• News :: Laurel student to sit with her class
• News: 5K run/walk to help family treat their 2 young ‘medical zebras’ with EDS | Spartanburg, S.C.(-)
• News: A piece of me — Page 1 — Times Union – Albany NY(-)
• News: Ellen Lenox Smith and Stuart Burns Smith | Rhode Island news | The Providence Journal(-)
• News: Laurel School Board changes graduation policy
• News: Lincoln’s death revisited
• News: Media Distorts New Medical “Hard Case” to Promote Assisted Suicide in France(-)
• News:“Power to devastate and destroy families”

We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from articles that require subscriptions or paid memberships to access.