This is our quarterly round-up of information about Ehlers-Danlos Syndrome (EDS). For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
- Blogs/Online Diaries
- Blog: if you know of an orthopedist who treats EDS patients in/near the Chicago area or Illinois
- Blog: More Diagnoses EDS
- Blog: Bruises and books
- Blog: Crazy Sexy EDS
- Blog: Disabled People – No special treatment – The Practical Response
- Blog: Does anyone know the difference between Ehlers-Danlos syndrome and Hypermobility?
- Blog: Double jointed teenagers in new research
- Blog: Dr Holick knows vit D
- Blog: EDS & Pain (Warning: dull alert)
- Blog: Ehlers-Danlos test results
- Blog: Ehlers-Danlos syndrome & fibro
- Blog: Ehlers-Danlos syndrome how is it diagnosed?
- Blog: Ehlers-Danlos Syndrome Types | Arthritis A to Z articles!
- Blog: Ehlers-Danlos, Private Enemy #1
- Blog: Feet and EDS/hypermobility
- Blog: Ghastly: That’ll teach him to underestimate stupid people.
- Blog: Government responds to petitions (EDS/Hypermobility)
- Blog: Hi I just found this group serendipitousl
- Blog: Hospital v. Ehlers-Danlos Syndrome
- Blog: Hysterical medicine, a new mental illness? by Frank Albrecht, Ph.D. « Simon Wessely I Know it ALL
- Blog: I could turn into a gym junkie & spend hours a day & still never have the strength
- Blog: I said a dirty word and cannot get helath insurance
- Blog: I’m Still Around
- Blog: Insomnia
- Blog: Magnificent 7 Fan Fiction & EDS
- Blog: A Healthy Role For Insurers After Health Care Reform : Healthcare Reform 2008(-)
- Blog: No special treatment – The Emotional Response(-)
- Blog: No special treatment for the disabled
- Blog: Nurse Laurie Gregory is a dirty rotten liar
- Blog: Oh man. I Have EDS
- Blog: Ortho Man(-)
- Blog: pain management failures
- Blog: Post-Op Update, awareness items vs the economy
- Blog: Problems with docs(-)
- Blog: The Biopsy
- Blog: The Damage Doctors Do
- Blog: the MD established that I had an underlying genetic condition known as Ehlers-Danlos syndrome (EDS)
- Blog: Things I have learned so far
- Blog: Through Myself and Back Again – blog about life with disability, written by a Brit with EDS III
- Blog: Time to Recharge (EDS and Spirituality)
- Blog: Tired of People not Understanding(-)
- Blog: UPDATE: BIG DECISION Pain Meds
- Blog: UPDATE: my wrist – the BUNNY ™ MySpace Blog(-)
- Blog: Weights and Balance
- Disability/Legal
- Disability: having a disability insurance can save your financial life
- Disability: protecting Social Security disability from collectors.
- Disability: Social Security Offers Positions to 144 Administrative Law Judges(-)
- Legal: State Farm Hit With Civil RICO Claim Over Sham Medical Exams(-)
- Forums – Public Posts
- Forum: Ehlers Danlos Info Links List(-)
- Forum: Does physical therapy help?
- Forum: Gastroparesis Discussion
- Forum: Gastroparesis Discussion(-)
- Forum: It’s Been A Crazy Few Weeks… (update)(-)
- Forum: just kinda/sorta diagnosed with Benign Joint Hypermobility
- Forum: Link between EDS and Austism Spectrum Disorder
- Forums: Ehlers Danlos Info Links List
- Medical
- Medical: Double-jointed teenagers in new chronic pain research | HULIQ(-)
- Medical: EDS and Excercise
- Medical: Gastrointestinal Disorders in Patients with Hypermobile or Classical Ehlers-Danlos Syndromes.(-)
- Medical: Hemoptysis &. Ehlers Danlos syndrome(-)
- Medical: Hypermobility – Source: Current Opinions in Rheumatology, Jan 2008(-)
- Medical: Multiple spontaneous dislocations in a patient with Ehlers-Danlos syndrome – Emergency Medicine Journal(-)
- Medical: Studies Using the FONAR UPRIGHT(R) Multi-Position(TM) MRI Published in The Journal of Neurology As Beneficial in Evaluating the Dynamic Aspects of Chiari Malformation(-)
- News
- News: Court to Hear Disability-Claims Case: Financial News – Yahoo! Finance(-)
- News: Emily Worth – Makes Therapy Seem Like Child’s Play(-)
- News: Fibromyalgia & Lyrica(-)
- News: Fired worker with EDS sues college
- News: Group aims to help sufferers of rare disease | EastValleyTribune.com(-)
- News: Maternal care — or harm? – Los Angeles Times(-)
- News: Intense and sustained stretching can over time lead to “hypermobility”
- News: Peter H. Byers receives lifetime award in genetics from March of Dimes
- News: School board hears about teacher pay, more nurses, environment | North Carolina
- News: She makes us happy
We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from articles that require subscriptions or paid memberships to access.
