EDS Alert Newsletter No. 23

This is our monthly round-up of information about Ehlers-Danlos Syndrome (EDS). If there is not enough material to create a newsletter, the posts may end up occurring quarterly. For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.

• Blogs/Online Diaries
  
• Blog: Additional Reasons for Stretch Marks
• Blog: Diagnosis!
• Blog: doctor in Marin who understands EDS?
• Blog: Don’t let me suffer any more
• Blog: Ehlers-Danlos in dogs
• Blog: gastric bypass (for which I am not eligible because of the complications caused by EDS
• Blog: how doctors treat us sometimes; the list goes on and on for ways doctors find not to treat us.
• Blog: I have limited time left before there begins the 5 weeks of immobility.
• Blog: It was only when she was in Year11 that her rare condition was diagnosed as Ehlers- Danlos Syndrome.
• Blog: Life with EDS: surprises around every corner!
• Blog: Life with Enigmatic Illnesses – CFS, EDS, and more: Are YOU Bendy Too?
• Blog: Life’s not all plain sailing
• Blog: Moving Along – Done with PT! START NEW
• Blog: One particular Zebra is Ehlers-Danlos Syndrome (EDS),
• Blog: only physiotherapist that knows how to treat people with Ehlers-Danlos Syndrome.
• Blog: Our Journey with Ehlers-Danlos Syndrome: Things to Take Note of(-)
• Blog: Pensioner with EDS gets help with dog’s $5000 chemo treatment
• Blog: Silver Ring Splints – on a Child(-)
• Blog: skinny_hobbits: Hello everybody, nice to meet you all!!
• Blog: Surgery Date Finally Set…3 Months Late
• Blog: UPDATE: Pain Management Doctors = A Sobbing Bunny
• Blog: Well this is my first post.
• Blog:what it takes for me to just go to another persons house to watch TV.

• Disability
• Disability: CBS News investigation sheds light on disability benefits rejections(-)
• Disability: CBS News Special Report on Social Security Disability Claim Backlog
• Disability: Long Term Disability in the NFL

• Forums
• Forums: Lists Of EDS Info

• Legal
• Legal: The Meaning of Arbitrary and Capricious Review (long term disability)
• Legal: Why You May Want to Appeal a Social Security Disability Denial to the US District Court in Virginia

• Medical
• Medical: Fatigue Disorders: Connective Tissue Disorder(-)

• News
• News: “Brave Angela has had life of painful struggle”(-)
• News: 11-year-old uses baseball to fight EDS
• News: After a Multitude of Tests, an Answer From Grandmother’s Memory – New York Times(-)
• News: Amy’s life has been transformed
• News: angel denardi_ ‘a very simple person with simple dreams’
• News: Bismarck Tribune – Columnist Has Vascular Ehlers-Danlos
• News: Brave Angela has had life of painful struggle – Huddersfield Examiner(-)
• News: Brooke – Teen Fights Rare Disorder
• News: Bruschi is stroke survivor’s inspiration – Braintree, MA – Braintree Forum(-)
• News: Chronic pain sufferer Claire Phipps tells her story | The Guardian | Guardian Unlimited(-)
• News: Danny, 8, to be special at grand prix
• News: EDS has not stopped Tracy from pursuing her twin loves of horses and working with children.
• News: ehlers-danlos syndrome-a mother’s burden
• News: Escondido community rallies around little girl’s struggle – North County Times – North San Diego and Southwest Riverside County News(-)
• News: For some, it’s a comfort to find a name, if not a cure | HamptonRoads.com
• News: Helping Dudley (Nova Scotia Woman With EDS)
• News: Hope for teenager with ‘elastic’ bones(-)
• News: Hospital mates show courage – Local – General – The Recorder(-)
• News: Las Vegas City Life(-) A day in the life of Cathe Boudreau Alleger
• News: Looking at chronic illness from an adult’s point of view – Health – www.smh.com.au(-)
• News: Plano teen finds purpose in illness that forced her to quit sport | Dallas Morning News(-)
• News: Richmond/Central Virginia Chapter of the Ehlers Danlos National Foundation meeting
• News: Teen overcomes odds to be karate champ
• News: The pain of being able to bend my body like a contortionist – icWales
• News: THIS INCREDIBLE ILLNESS DRIVES ME ROUND BEND(-)
• News: Woman doesn’t let multiple disabilities get her down(-)

We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from articles that require subscriptions or paid memberships to access.