This is our monthly round-up of information about Ehlers-Danlos Syndrome (EDS). If there is not enough material to create a newsletter, the posts may end up occurring quarterly. For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
Blogs
- Blog:EDS story of the week-Chloe is a six-year old with Vascular Type
- Blog: memorial tributes and EDNF partnership with National Tissue Bank -EDNFphoenixmetro MySpace Blog(-)
- Blog: The biopsy report(-)
- Blog: 9 Great Blogs & Ezines dealing with chronic pain issues
- Blog: a journey through eds & chiari
- Blog: A Medical Puzzle « The biopsy report
- Blog: a short note
- Blog: Adventures in Plano
- Blog: Americans with Disabilities
- Blog: Archive »Elastic Man
- Blog: Backtracking a bit to Assistive Technology(-)
- Blog: Benefits and Work
- Blog: Chairi Dr Appt
- Blog: EDS – Problems Absorbing Vitamins (I have scurvy)
- Blog: EDS and Chiari…….
- Blog: EDS and Dating
- Blog: EDS and Kids
- Blog: EDS and Physical Therapy
- Blog: Ehlers Danlos and Me: the nerve
- Blog: Foreign dislocation
- Blog: Hello All i’m a New member
- Blog: Home Study Visit & China Update (adopting and EDS)
- Blog: I’ve got a label! Hypermobility
- Blog: Learning to live with gastroparesis
- Blog: Powerful, Personal Poetry
- Blog: Thanks Again for Checking In: Please Note that the Post Date for the following two Blogs is Irrelevant to their Content(-)
- Blog: Undoing The Damage Its Not Like Knowing Would Have Made A Difference? Or Would It?
- Blog: Visit to the rheumatologist: aka how not to scream (just)
- Blog: update on EDS 2008 Conference – EDNFphoenixmetro MySpace Blog(-)
Disability/Legal
Disability: Sick Of Waiting
Disability: SSDI Disability Profiles(-)
Forums
Forums: EDS and pregnancy
Forum:EDS and RA – Arthirtis
Forum: EDS How to stay happy?
Forum: EDS III without skin issues????(-)
Forum: EDS plus myofascial pain/fibro(-)
Forum: Nerve Pain question
Forum: Possible EDS Type I – Insurance and other questions.
Medical
Medical: Hypermobility
Medical: Men and stretch marks
Medical: reproducibility of tests and criteria for generalized joint hypermobility & benign joint hypermobility syndrome – Juul-Kristensen et al. 46 (12): 1835 – Rheumatology(-)
Medical: Yoga is no universal cure(-)
News
News – Chronic Pain – Jane E. Brody – New York Times
News: Columnists » Reid – It wasn’t business as usual(-)
News: Docs, patients sue over ban on suicide aid(-)
News: EDS in the WSJ: How U.S. Health System Can Fail Even the Insured A Woman Endures 16-Month Odyssey To Diagnosis
News: Video – Someone 2 Know: Bill Khal(-)
News: Defying the Challenges of Being Physically Challenged
News: Design award win for rehabilitation equipment specialist (hypermobility)
News: Family in need to get an assist(-)
News: Guiliana aspires to Channel swim(-)
News:Lauren delighted with the chair
News: Petition to: Urgently get the DWP to recognise Hypermobility and Ehlers Danlos Syndrome as being long term incurable illnesses.(-)
News: Spending survey highlights mums’ spending – I have hypermobility syndrome
News:Think of Health Insurance As a Homeowners Policy (LA MD Familiar With EDS)
Video
Video: The Incredible Rubberman
We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from medical articles that require subscriptions or paid
memberships to access.
