EDS Alert Newsletter No. 19

This is our monthly round-up of information about Ehlers-Danlos Syndrome (EDS). If there is not enough material to create a newsletter, the posts may end up occurring quarterly. For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.

+	Blog: Ehlers Danlos Video (This is the syndrome I have)
+	Blog: Bye-Bye Body Part – EDS and my Appendix
+	Blog: Dr Freak Clinic (EDS)
+	Blog: Just call me stretch – had always assumed, from my own research, that I had a mild form of Ehlers Danlos Syndrome (EDS)
+	Blog: gastric reflux – Gone Natural, Now Cured
	Blog: mystery diagnosis (EDS & Chiari)
	Blog: My spine isn’t supposed to bend that way!Which way?
+	Blog: *Patients that have Lupus are often misdiagnosed with EDS or Marfan.
+	Blog: Bendy Girl Interview
+	Blog: Can you spare a vote?(-)
+	Blog: Dog With EDS
	Blog: Done running
+	Blog: EDS First Appointment
+	Blog: EDS &Physical Therapy
	Blog: EDS and Health Insurance: Should I Avoid Diagnosis For Health Insurance Purposes?
+	Blog: Ehlers-Danlos Syndrome (techyum)
+	Blog: Good News: my type of EDS is NOT Vascular,
+	Blog: Hypermobility(-)
+	Blog: I Can Not Be Cured
	Blog: I saw the ‘new’ Thoracic Surgeon again…EDS
	Blog: I went to the local health centre today…EDS
	Blog: Introduction, EDS type 8,
	Blog: Invisible Illness Week Hypermobility
	Blog: It has a name…… EDS
	Blog: Making a start-about me and my conditions…hypermobility
+	Blog: NHS Dentistry Problems with teeth and gums are common to those with EDS.
+	Blog: The Wheelchair Service – Part 1
	Blog: Visit to the rheumatologist: aka how not to scream (just)
+	Blog: What Exactly is a Chiari Malformation?
+	Blog: When injury is the practice: working with what is (EDS and yoga)
	Blog: eds thoughts.
	Blog: have an inherited connective tissue disorder, Ehlers-Danlos syndrome, which leaves me susceptible to diverticular disease.
	Blog: non-specific connective tissue disorder that lies somewhere between Ehlers-Danlos Syndrome & Osteogenesis Imperfecta
	Blog:The big hospital appointment with Professor Graham
	Disability: Bingaman Introduces Three Bills to Strengthen Medicare
+	Disability: Disability applicants decry speedy exams(-)
	Disability: Long Term Disability – Structural conflicts of interest – standard of review ERISA
	Disability: New Test for Chronic Fatigue Syndrome Will Help Long Term Disability Claims
+	Forum: Medical Pictures of EDS Patients
+	Forum: Question about MRI findings. – BrainTalk Communities
	Forum: gastroparesis secondary to Ehlers-Danlos Syndrome,
+	Medical: News about vascular-type Ehlers-Danlos syndrome(-)
+	Medical: Ehlers-Danlos Syndrome Case Study- New England Journal Medicine
+	Medical: Ehlers-Danlos Syndrome Treatment Options
	Medical: free continuing, distance learning course designed for primary care physicians on different types of chronic pain.
	News: 11-year-old uses baseball to fight condition (EDS)
+	News: Acupuncture is best way to treat back pain, study finds
	News: Father of EDS Girl Attacked
	News: How one man conquered chronic pain – CNN.com(-)
	News: October Meeting of EDNF Phoenixmetro
	News: Petition to: CREATE A FUND TO RESEARCH ‘EHLERS DANLOS’.(-)
+	News: The guilt of a mum – Hartlepool Mail
+	News: Wisconsin woman leads fight for medical marijuana

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