EDS Alert Newsletter No. 18

This is our monthly round-up of information about Ehlers-Danlos Syndrome (EDS). If there is not enough material to create a newsletter, the posts may end up occurring quarterly. For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.

Blogs/Online Diaries
+Blog – hyper extension and EDS
+Blog » EDS and Lasik?(-)
+Blog: Good News, I Finally Have A Diagnosis
+Blog: A member of the Ehlers Danlos forum is going to be on TV(-)
+Blog: Invisible Chronic Illness Awareness Week(-)
+Blog: Just call me stretch – had always assumed, from my own research, that I had a mild form of Ehlers Danlos Syndrome (EDS)
+Blog: memorial service notice (California) for EDS member who passed in 2006
+Blog: “For everything, there is a season…” overcoming challenges
+Blog: Another day of misery….(-)
+Blog: diagnosed with EDS, sad
+Blog: Doctors Visit With EDS
+Blog: Don’t Have Marfans But Have EDS
+Blog: EDS & Surgery In The UK
+Blog: EDS – Overlapping types or mistyped?(-)
+Blog: EDS = Mutant Zebras Pt 1
+Blog: EDS = Mutant Zebras Pt 2
+Blog: EDS All In The Family(-)
+Blog: EDS Tshirts
+Blog: Ehlers Danlos Video from Medical Incredible
+Blog: Family History In EDS
+Blog: Get out the gene pool your not perfect (deciding to have children with EDS)
+Blog: How State Medical Boards Promote Suicide By Chronic Untreated Pain
+Blog: huh,I have hypermobility as well.
+Blog: Hypermobility and me
+Blog: I created a new community for EDS People On LJ
+Blog: I decided to look up EDS and…..
+Blog: I have Benign Joint Hypermobility Syndrome.
+Blog: I have Ehlers Danlos Syndrome.
+Blog:I just started a CarePage that will help support the Ehlers-Danlos National Foundation.
+Blog: I was on Primetime tonight…(more on the EDS Primetime special)
+Blog: I went to Denver for a genetics test – I have EDS Type 3
+Blog: Individuals with EDS have a defect in their collagen
+Blog: Intro – Me and EDS
+Blog: Introduction, EDS type 8,
+Blog: Let’s try this. measuring EDS milestones
+Blog: Life with EDS, Chiari & Tethered Cord: Good News!(-)
+Blog: Long Road To Diagnosis
+Blog: McDonald’s Delivery Truck Trumps Handicapped Parking(-)
+Blog:Obituary for California attorney who died from EDS
+Blog: officially diagnosed with eds
+Blog: On The Road To Diagnosis
+Blog:Primetime Live Segment About EDS
+Blog: Raising money for a very worthy cause…
+Blog: Real Life Stories With EDS
+Blog: So, about that joint thing…(-)
+Blog: So, I’m learning about EDS (Ehlers–Danlos syndrome) …
+Blog: the beauty of medical bureaucracy & EDS
+Blog: The biopsy report (EDS & Diverticulus)
+Blog: the hip & EDS
+Blog: Ups & Downs, Diet With EDS
+Blog: usually having EDS is like an undercurrent, but……

 

Disability
+Disability: Court Documents at Your Fingertips(-)
+Disability: Disability benefits are not taxable income(-)
+Disability: Commissioner Astrue Proposes to Extend Social Security’s Quick Decision Process To Other States
+Disability: Long Term Disability Attorneys Fight to Ban Unfair Insurance Contract Clauses in New York
+Disability: Progressive Engagement With Disability
+Disability: Tips to Win Your Social Security Disability Claim in New York
+Disability: Why You May Want to Appeal a Social Security Disability Denial to the US District Court in Virginia (EDS & SSDI)

Forum Posts
+Forum: Excellent source of EDS clinical info(-)
+Forum: Swimming and subluxations(-)
+Forum: Possible New Forum In The UK? Ehlers Danlos And Joint Hypermobility Syndrome • Index page(-)

Medical
+Medical News about vascular-type Ehlers-Danlos syndrome(-)
+Medical: Proprioception & EDS
+Medical: Water Training and Ehlers-Danlos Syndrome – Ehlers-Danlos Natl. Foundation
+Misc: An Occupational Therapist who has heard of EDS! Lucky me.(-)

News
+News: Former Policewoman With EDS Embarks On New Career
+News: MedicalCannabis Quest for Justice
+News: October Meeting of EDNF Phoenixmetro
+News: Siobhan Reynolds – Still Fighting Pain & Fighting To Get Pain Treated

We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from medical articles that require subscriptions or paid
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