EDS Alert Newsletter No. 17
August 24, 2007This is our monthly round-up of information about Ehlers-Danlos Syndrome (EDS). If there is not enough material to create a newsletter, the posts may end up occurring quarterly. For more information about me and this newsletter, please look here for Sources of Medical Info and Support Groups.
Blog/Online Diaries
- Blog: 3rd Annual EDS Fundraiser and BBQ in California
- Blog: EDS – I Am Not Crazy
- Blog: EDS & Birth Control Methods
- Blog: EDS & pain specialist
- Blog: EDS and the Absolute Value Theory
- Blog: EDS Suppoirt Groups -Our Journey with Ehlers-Danlos Syndrome: Sorry for the
- lack of posts…(-)
- Blog: Ehlers Danlos Video from Medica Incredible
- Blog: Good News, I Finally Have A Diagnosis
- Blog: Hypermobility = EDS Type 3
- Blog: I just started a CarePage that will help support the Ehlers-Danlos National
- Foundation.
- Blog: I went to Denver for a genetics test – I have EDS Type 3
- Blog: My right wrist has slowly begun to dislocate on occasion
- Blog: My Son David
- Blog: My three amazing mothers
- Blog:Off To NIH in Baltimore, MD
- Blog: On The Road To Diagnosis
- Blog: So, about that joint thing…(-)
- Blog: The big hospital appointment in London with Professor Graham
- Blog: The biopsy report (EDS & Diverticulus)
- Blog: Ups & Downs, Diet With EDS
- Blog: What Is EDS?
- Blog:On being in a wheelchair
Disability
- Disability : SSDI Disability delays can lead to personal havoc – USATODAY.com(-)
- Disability: Long Term Disability Attorneys Fight to Ban Unfair Insurance Contract Clauses in New York : The New York Disability Law Blog(-)
- Disability: Tips to Win Your Social Security Disability Claim in New York
- Disability: U.S. Not Ready for Rise in Disabled(-)
- Disability: What Medical Records Should You Submit When You Apply for Social Security Disability Benefits?(-)
Public Forum Posts
- Forum:Excellent source of EDS clinical info(-)
- Forum: An Occupational Therapist who has heard of EDS! Lucky me.(-)
- Forum: EDS & gastroparesis
- Forum: Looking for a Primary Care Physician in Boston(-)
- Forum: sublux, dislocation- the difference?(-)
- Forum: Swimming and subluxations(-)
Medical
- Medical: Antacid Drugs Can Cause Delayed Gastric Emptying
- Medical: EDS Today No. 13 (Spring-Summer 2006): Birth Control & EDS; Lead Article: Ehlers–Danlos syndrome type IV and recurrent carotid-cavernous fistula:
- Medical: Ehlers-Danlos syndrome type IV: anesthetic considerations
- Medical: Ehlers-Danlos syndrome: insights on obstetric aspects
- Medical: Have you ever had a patient complain of recurring pain in numerous joints, or respraining of a particular (wrist) joint
- Medical: Thesis Extract About EDS
News
- News: angel denardi_ ‘a very simple person with simple dreams
- News: Coping With An Invisible Disability
- News: EDS Teen Evolves Through Her Pain
- News: Ehlers-Danlos in August’s Chronique Spotlight(-)
- News:Ehlers-Danlos Syndrome, A mother’s burden(-)
- News: My name is Gary Stretch, but you can call me freak test(-)
- News: Siobhan Reynolds – Still Fighting Pain & Fighting To Get Pain Treated
- News: SOCIAL SECURITY DISABILITY – WTHR – Indianapolis News
- News:Tracey’s our mum of courage: Sunderland Echo – Daily Feature
Video
We only link to publicly accessible entries and websites. If you would like your post removed from this newsletter please drop a comment below or e-mail us at: edsalert@gmail.com. Please remember when you’re visiting people’s personal blogs or diaries that these often contain information of a personal and sensitive nature and to respect their privacy and concerns. We only quote excerpts from medical articles that require subscriptions or paid memberships to access.
